6
min read
November 27, 2023

Katie Beckett Medicaid Waiver Explained

The Katie Beckett program allows families to provide at-home care for children with autism who may otherwise require institutional care. The waiver provides families with access to Medicaid coverage for their child's care. This program can be a lifeline for families.

Written by the apricott team

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If you are looking for financial assistance for your child with autism, you may have heard of the Katie Beckett Medicaid waiver.

This program can be a lifeline for families. It helps pay for medical care and other expenses related to children's conditions.

For autism, the Katie Beckett program allows families to provide at-home care for children with autism who may otherwise require institutional care.

In this article, we'll explain what the Katie Beckett Medicaid waiver is, how it works, and how you can apply for it.

What is a Katie Beckett Medicaid Waiver?

First, let's talk about what a Medicaid waiver is.

Medicaid is a government-funded healthcare program that provides coverage to low-income individuals and families.

It is a federal program that is run by each individual state.

However, not all medical expenses are covered by standard Medicaid. Also, not everyone is eligible for Medicaid coverage.

Medicaid is a government-funded healthcare program that provides coverage to low-income individuals and families.

That's where waivers come in.

A waiver is a special program created by the federal government. It allows states to provide more flexible programs that meet the unique needs of their populations.

A waiver "waives" certain Medicaid rules and requirements.

Some examples of waivers are the Home and Community Based Services, Traumatic Brain Injury, and the Katie Beckett waiver.

About the Katie Beckett Waiver

The Katie Beckett Medicaid waiver provides financial assistance to families who have children with significant medical needs, including autism.

The name comes from a young girl who was born with cerebral palsy and needed extensive medical care.

The waiver allows children with disabilities who require an institutional level of care to receive Medicaid coverage, even if their parents' income would normally disqualify them from receiving Medicaid benefits

At the time, her parents were unable to afford the cost of her care and were not eligible for Medicaid because they earned too much money.

However, they were able to work with lawmakers to create a special waiver.

The new waiver allows children with disabilities who require an institutional level of care to receive Medicaid coverage, even if their parents' income would normally disqualify them from receiving Medicaid benefits.

This can be a critical source of support for families who might otherwise struggle to afford the cost of their child's care.

Katie Beckett’s Story

Katie Beckett was born in 1978 and lived in Cedar Rapids, Iowa.

At just four months old, Katie contracted viral encephalitis, an inflammation of the brain.

Her parents were told that she would never be able to live at home and would require extensive medical care. For the next three years, Katie had to be hospitalized, and her parents were not able to take her home.

However, they wanted her to be able to live with them and receive care at home.

Katie's parents applied for Medicaid but were denied because their income exceeded the eligibility limits.

Katie's parents applied for Medicaid but were denied because their income exceeded the eligibility limits.

They began to advocate for a waiver that would allow children with disabilities who require an institutional level of care to receive Medicaid coverage, even if their parents' income exceeds the usual eligibility limits.

Katie's story caught the attention of lawmakers, and in 1981, they created the Katie Beckett waiver.

Katie was the first child to benefit from this waiver, and it allowed her to receive the care she needed at home with her family.

The waiver allowed her to receive the care she needed at home with her family.

Katie and her family received federal support that allowed her to live at home.

Katie passed away in 2012 at the age of 34, three times longer than doctors estimated.

She attended college, had a job, and helped advocate for others with special health care needs.

Her mother notes that Katie was able to live a healthy, happy, and independent life.

Her mother notes that Katie was able to live a healthy, happy, and independent life.

What Katie Beckett Covers

The Katie Beckett waiver provides families with access to Medicaid coverage for their child's care.

Once the waiver is approved, families can receive coverage for a wide range of medical and non-medical services, many of which are essential for home care.

These can include:

  • In-home nursing care
  • Respite care
  • Medical equipment and supplies
  • Therapy services
  • Home modifications
  • Transportation to medical appointments

Medicaid coverage can also provide families with access to services that are specifically tailored for children with autism.

These may include ABA therapy, dietary support, and medications.

By accessing these services through Medicaid, families can receive the support they need to help their child thrive in a home environment.

Medicaid coverage can provide families with access to services that are specifically tailored for children with autism.

Without this coverage, services like ABA therapy can get costly.

It's important to note that the specific coverage available may vary depending on the state where you live and the type of Medicaid program you qualify for.

Eligibility and Income Limits

To be eligible for the Katie Beckett Medicaid waiver, your child must meet certain criteria.

The criteria may vary based on the state, but there are similar guideline criteria.

They must:

  • Be under the age of 19
  • Have a disability that requires an institutional level of care

Application Process

The application is through the state.

To apply for the waiver, you will need to contact your state's Medicaid agency.

You can also find information on each state's Katie Beckett program online.

This is the application for the Georgia state waiver.

To apply for the waiver, you will need to contact your state's Medicaid agency.

In Georgia you can also apply directly online.

You will need to provide detailed information about your child's medical condition, as well as information about your family's income and assets.

To increase your chances of approval and ensure a smoother application process, it may be helpful to seek the assistance of an expert who is knowledgeable about the Katie Beckett Medicaid waiver.

These experts can guide you through the application process and provide support in gathering the necessary documents.

As a result, you may have a higher approval rate for the waiver and higher renewal rates each year.

Be sure to do your research and choose a reputable expert who can help you navigate this process successfully.

Participating States

The Katie Beckett Medicaid waiver is available in many states, but the specific rules and eligibility requirements may vary.

Check with your state's Medicaid agency to see if the program is available where you live.

Additional Questions

How do I apply for my child?

To apply for the Katie Beckett Medicaid waiver, you will need to contact your state's Medicaid agency. They will provide you with the necessary forms and information about the application process.

You will need to provide detailed information about your child's medical condition, as well as information about your family's income and assets.

Is there a cost?

There is no cost to apply for the Katie Beckett Medicaid waiver.

If accepted, there may be some co-pays or other costs associated with certain services under the Medicaid coverage.

How often is eligibility re-determined?

Eligibility for the Katie Beckett Medicaid waiver is typically re-determined on an annual basis. Some states have changed the determined to at least two years, reducing the burden on families.

What happens when a child turns 19?

When a child turns 19, they may no longer be eligible for the Katie Beckett Medicaid waiver.

However, they may be eligible for other programs that can provide financial assistance for medical care.

What happens when a child’s application is denied?

If your child's application for the Katie Beckett Medicaid waiver is denied, you have the right to appeal the decision. Contact your state's Medicaid agency for information about the appeals process.

Summary

We hope that this article has helped you understand what the Katie Beckett Medicaid waiver is and how it works.

If you think that your child may be eligible for this program, we encourage you to contact your state's Medicaid agency to learn more.

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